News and Comment

An advance care plan (ACP) sets out the actions that should be taken when a child’s condition becomes unstable or deteriorates or they develop potentially life-threatening complications of their illness. ACPs detail collaborative discussions between professionals and families regarding their...

More households are expected to find themselves feeling the squeeze as energy prices rise from April 2022. This rise is extremely worrying for families who already struggle to make ends meet and puts further pressure on families caring for a...

A new legal duty on the NHS in England to plan and fund palliative care has moved a step closer following peers’ decision to add a key government amendment to the Health and Care Bill last night. Lord Kamall’s amendment...

Lord Kamall, the government’s health and care minister in the House of Lords, has tabled an amendment to the Health and Care Bill which would specifically require integrated care boards (ICBs) to commission palliative care. We have been campaigning for...

More families with seriously ill children will be able to access vital information and emotional support, thanks to a grant of £40,000 from Bristol Freemasons to Together for Short Lives. Our free-to-use specialist helpline is staffed by trained experts who...

"We are referring you to a children’s hospice…" These are not the words that you would associate with your beautiful newborn baby. After two months in the NICU we were expecting to take our baby home like every other family,...