Our partners

The Association for Paediatric Palliative Medicine represents doctors working in paediatric palliative care across all care settings in the UK. This includes both paediatricians with an interest in paediatric palliative medicine and other doctors, particularly GPs with a specialist interest, many of whom are working in children’s hospices.

For more information visit The Association for Paediatric Palliative Medicine website

National Voices is the leading coalition of health and social care charities in England. We have more than 200 members covering a diverse range of health conditions and communities, connecting us with the experiences of millions of people.

For more information visit the National Voices website

The SPPC is a collaboration of organisations involved in providing care towards the end of life in Scotland. SPPC membership includes all the territorial NHS Boards, all Scottish hospices, a range of professional associations, many national charities, local authorities, social care providers and universities.

For more information visit the Scottish Partnership for Palliative Care website

Sue Ryder is here to make sure that everyone approaching the end of their life or living with grief can access the support they need. They can’t make life’s most difficult moments easy, but they can carry some of the load.

For more information visit the Sue Ryder website

The National Bereavement Alliance is a membership group of organisations supporting and working with bereaved people.

We collaborate to provide a collective voice representing both bereaved people and families and those who provide support.

For more information visit the National Bereavement Alliance website

The world’s largest nursing union and professional body. They are over half a million nurses, midwives, nursing support workers and students working together to advance our profession.

For more information visit the Royal College of Nursing website

Their vision is for every baby and their family to receive the highest standard of perinatal care.

For more information visit the British Association of Perinatal Medicine website

The collaborative is a group of NHS and private sector organisations with the common goal of delivering the best possible care to children and young people with life limiting and life threatening conditions.

For more information visit the Child and Young Person’s Advance Care Plan Collaborative (CYPACP) website

The Children and Young People’s Cancer Coalition (CYPCC) is a CEO-led charity coalition, bringing together more than 40 charities with an interest in children and young people’s cancer. It aims to make things better for children and young people with cancer through speaking up on issues that matter to them, having a unified voice and supporting each other as charities and CEOs.

For more information visit the Children and Young People’s Cancer Coalition website

They are a UK wide charity providing specialist nurses and support for children with complex, lifelong conditions.

For more information visit the Roald Dahl’s Marvellous Children’s Charity website

WellChild is the national UK children’s charity making it possible for children and young people with complex medical needs to thrive at home instead of hospital, wherever possible.

For more information visit the WellChild Charity website

They are the UK’s largest grant-making charity for families raising a disabled or seriously ill child, on a low income.

For more information visit the Family Fund website

Dingley’s Promise is passionate about giving every child with special educational needs and disabilities (SEND) the best start in life.

For more information visit the Dingley’s Promise website

Harry’s Pals is a unique charity dedicated to supporting parents who have recently received a diagnosis that their child has a severe illness or disability.

For more information visit the Harry’s Pals website

When a parent first hears the words “your child has cancer“ it can be the start of a lonely and arduous journey. It’s Never You is the only UK charity dedicated to the needs of parents during their child’s treatment.

For more information visit the It’s Never You website

Convened by the National Children’s Bureau (NCB) and the Council for Disabled Children (CDC), the Children and Young People’s Health Policy Influencing Group (HPIG) provides a strong, independent voice on the health needs of babies, children and young people in England.

For more information visit the Scottish Partnership for Children and Young People’s Health Policy Influencing Group website

The Royal College of Paediatrics and Child Health, a registered charity and the membership body for paediatricians in the UK and around the world. Founded in 1996 and now with about 25,000 members in the UK and internationally, they play a major role in postgraduate medical education, professional standards, research and policy.

For more information visit the Royal College of Paediatrics and Child Health (RCPCH) website 

Together for Short Lives is a member of the Baby Loss Awareness Week coalition of 40 charities. The charities leading Baby Loss Awareness Week provide support to anyone affected by pregnancy loss and the death of a baby, and work with health professionals and services to improve care, and raise awareness of pregnancy and baby loss. The coalition also want to identify how we can reduce preventable deaths and improve support for all those affected.

For more information visit the Baby Loss Awareness Week website

Contact is the UK charity for families with disabled children. Contact supports families with the best possible guidance and information. They bring families together to support each other, and help families to campaign, volunteer and fundraise to improve life for themselves and others.

For more information visit Contact’s website

The Council for Disabled Children (CDC) is an umbrella charity for the disabled children’s sector, bringing together professionals, practitioners and policy-makers. CDC wants disabled children and young people and those with special educational needs to have full and happy childhoods, to fulfil their potential, and be active within the community.

For more information visit The Council for Disabled Children’s website

The Disabled Children’s Partnership is a coalition of over 50 organisations campaigning for improved health and social care for disabled children, young people and their families. Together for Short Lives is a member of the partnership, working with partners to address the lack of health and social care services; improve the quality of services available; make sure families can access those services; and ensure professionals communicate with each other and work together.
For more information visit the Disabled Children’s Partnership website

The European Association for Palliative Care (EAPC) is a palliative care organisation in Europe and provides a forum for all of those either working, or with an interest in palliative care throughout Europe and beyond. The EAPC has 55 member associations from 31 European countries and aims to speak with ‘one voice and one vision’ on matters that are important for the practice and development of palliative care.

For more information visit The European Association for Palliative website

Hospice UK’s mission is to promote and protect hospice care for all who need it, for now and forever.

As the national champion for hospices, they fight to make sure hospice care is there for everyone, from every background. They fight to make sure hospices are able to deliver the best, most personalised care. They fight to make sure hospices can thrive – today and into the future.

Hospice UK represents the community of more than 200 hospices across the UK. They do everything they can for children and adults living with long-term illness, or approaching the end of their lives. They do everything they can to support hospices’ incredible, invaluable work.

For more information visit the Hospice UK website

The International Children’s Palliative Care Network (ICPCN) is a worldwide network of individuals and agencies working with children and young people with life-limiting conditions. ICPCN shares a vision that the total needs of life-limited children and their families should be met, to encompass physical, emotional, social, spiritual and developmental aspects of care. Together for Short Lives is a member of ICPCN.

For more information visit the International Children’s Palliative Care Network website

Marie Curie is there for people living with any terminal illness, and their families. They offer expert care, guidance and support to help them get the most from the time they have left, and have a network of nurses who work in the homes of terminally ill patients. The charity supports people throughout their illness by giving practical information, support from trained volunteers and being there when someone wants to talk.

For more information visit the Marie Curie website

The National Association for Hospice at Home (NAHH) is a national umbrella and representative body for Hospice at Home organisations in the UK. NAHH supports its members and other organisations to develop and improve the palliative and end of life care they provide in patients own homes. The aim is for the very best care for everyone facing the end of life, no matter where they live, who they are or what their condition is.

For more information visit the National Association for Hospice at Home website