Parents of seriously ill babies make enormous sacrifices – but being able to leave the house as a family shouldn’t be one of them. Tomorrow, members of the House of Lords (or ‘peers’) have an opportunity to give an amazing...
Hosted by former Martin House Children’s Hospice fundraising manager Stuart Andrew (Conservative MP for Pudsey), our ‘Care Around the Clock’ reception was an important opportunity for our sector to ask parliamentarians to press ministers and local health and social care...
Today, I am hosting a parliamentary reception on behalf of Together for Short Lives – the UK charity for children with life-limiting and life-threatening conditions. The event is part of the charity’s campaign to secure an around the clock service...
My name is Lucy Watts and I am 22 years old. I have a life-limiting/life-threatening form of a condition called Ehlers-Danlos Syndrome. I spend a lot of time in hospital, but I want to be supported in the community, in...
We are fortunate to live in a country where end of life care is the best in the world. Like many across the children’s palliative care sector, I’ve spent time reflecting on the Economist Intelligence Unit’s (EIU) Quality of Death Index and...
Last week (Friday 23rd October), peers debated Baroness Finlay’s Access to Palliative Care Bill in the House of Lords. Together for Short Lives briefed peers on the importance of including children, young people and their families in the debate and called on them...
